The day of my diagnosis was not a life-changing moment. It's fairly common for people to have years between the onset of pain and their diagnosis, and I am no exception to that. So by the time I got diagnosed, I already had a pretty clear idea of what I was dealing with. For me, … Continue reading My journey from pain to diagnosis
Month: March 2019
My top 5 apps to manage chronic illness
These are my favourite phone apps for monitoring and managing health and chronic illness
From failure to thriving
Prompts from A Chronic Voice's March 2019 Linkup Party
How I cope with flare days
Everyone has their ways of coping with flare days, and I want to share some of mine. I have spent a lot of time battling through the flare days, especially when I first started dealing with them. Once I was through the flare, I would punish myself for falling behind on housework by trying to … Continue reading How I cope with flare days
Spoonie Hobbies
Hypermobility, for me at least, comes with difficulties using my hands. I have always had issues with writing. I just can't grip pens properly and in high school, that resulted in a big lump on the side of one finger where my pen had to rest so I could write. Now I have trouble hand … Continue reading Spoonie Hobbies
Managing Weekends
I love weekends for getting to laze in bed in the morning and take my time doing things the rest of the day. They are still exhausting and painful though. During the week, my focus is on going to work and making sure my children get dinner, showers and bedtime after work. All of my … Continue reading Managing Weekends
Back to work
I am lucky enough to work a mostly desk job with a supervisor who didn't have an issue with me taking half of last week off to deal with being sick. Having an employer who is flexible around such things is one of the many reasons I love my job and push myself to be … Continue reading Back to work
The first hospital trip
I always figured that with the pain being chronic, and not curable, that hospital was completely useless. Until last night. I ended up in hospital, hooked up to an ecg and having blood tests and xrays to make sure I wasn't having a heart attack. This is the first time I have ever been admitted … Continue reading The first hospital trip
Ruby the Chronic 